Build a comprehensive database of LC / ME/CFS / POTS/OH treating physicians.

It is extremely hard (likely impossible unless you live in New York City or urban California) to find physicians aware of, and experienced in treating, Long Covid and other infection activated chronic conditions. The ME Action physician finder doesn't go far enough. In the absence of appropriately experienced physicians, the availability of short primer for physicians describing the features (breadth of symptoms) of IACCs and first line treatments along with key references would be tremendously helpful for patients who are having to educate their providers - presupposing that the providers are willing to be educated by their patients. The ME/CFS Clinician Coalition letter is a start, but doesn't go far enough.

Anonymous posted 8 months ago

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